CARBOGEN AMCIS x Amicus Therapeutics: Patient Advocacy - Rare Diseases Awareness Event video

CARBOGEN AMCIS together with Amicus Therapeutics hosted a patient advocacy event, bringing together patients and experts to shed light on a rare disease.

The event featured inspiring talks from a patient, a leading professor, and other voices from the community, each sharing unique perspectives on the challenges and hopes within the rare disease journey. An inspiring event that reminds us that advancing science is only part of the mission; listening to and learning from patients and advocates is essential.